eQOL – Epilepsy Quality of Life
EQOL (pronounced ‘equal’) is a web resource developed for anyone living through, or managing and caring for a person diagnosed with, epilepsy. It is designed to provide a trusted place, where people (patient, families and professionals) can find and share resources and research papers, they have discovered or perhaps authored (in the case of those healthcare professionals).
Living Through…..
For many, the Coronavirus pandemic has highlighted how life can trigger various challenges, some quite traumatic.
In this short video, produced with the creative input of our MD’s 13 year old son, along with the very professional voice of BBC Radio 4, Newsreader, Diana Speed, and input from patients living through a trauma, we created this short information video, designed to support our mission, and offer a perspective that we hope can support a person who is experiencing a challenging time.
Lifepsychol®
Lifepsychol® is an easy-to-use, patient-driven system, consisting of a handheld dial and web-based computer system. It enables people to record and monitor how their quality of life is affected by a life-threatening or chronic condition, and empowers them to discuss these issues with their health professional.
Mealwheel®
Mealwheel® is a public health tool to help people better understand the link between diet and physical activity. It is an adjustable visual aid designed to help simplify the diet message, supporting a tailored approach to weight management. As well as the adjustable plate there are resources developed to support the its use.
MS Quality Living, which is hosted on www.msql.org.uk is a project stimulated by Innervate Ltd in partnership with a group of health professionals to raise awareness of the impact that Multiple Sclerosis has on a person’s cognitive function and subsequently their quality of life. We hope to develop the website content so that it includes information about other aspects of care relevant to people with Multiple Sclerosis and include the material found in the various following booklets.
Working with the Primary care and Community Neurology Society (P-CNS) and Advances in Clinical Neuroscience and Rehabilitation(ACNR), Innervate identified the need for a journal that offered content that was relevant and readily accessible to primary care and community care health professionals working in or interested in neurology. Neurodigest, was developed and is free to access thanks to sponsors and advertisers.
MS and Cognitive Function
Cognitive change in MS is a complex issue. People with MS want to understand what cognition is, why they are experiencing problems and how they can help themselves. This booklet created by Innervate Ltd can help to provide some strategies and answers to questions that some may find difficult to answer. The content is organised into a series of sections including attention, memory, and executive function.
MS and Fatigue
Fatigue is one of the most common symptoms in MS. Understanding fatigue and learning to manage it can help support quality of life, and this booklet helps explore what can cause fatigue in those with MS. It also provides some useful information and strategies covering a number of aspects of fatigue including causes, sleep management, & keeping fit.
MS and the Family
MS can have a significant impact not only on people diagnosed, but also on the lives of family members and friends of a person living with MS. In this, the third in this series of booklets, the content has been divided into a number of sections including uninvited guests, emotion and cognition, pregnancy and parenting, and children and MS.
MS and Emotions
MS is a complex condition. People can experience very few symptoms and are mildly affected, whilst others may experience many more and severe symptoms. In MS, physical symptoms are relatively easy to recognise however emotional changes are more “hidden” and often not recognised. So MS can affect emotions as well as the body.
Genes and Life
Genes and Life’ is a concise public education programme Innervate Ltd produced in partnership with the University of Central Lancashire and Roche Genetics, a unit of F.Hoffman – La Roche Ltd.
The programme was developed to offer a practical perspective on the significance of the field of genetics in relation to advances in medical science. It was designed to help the public (your and old) to gain a better understanding of where genes may or may not impact on you and your family’s health.
Living and Coping with Cancer….
Living and Coping with Cancer…. Help & Support through, Letters from a Friend
By Dr Sidney Bindemann
This book is a culmination of Dr Bindemann’s 30+ years experience of providing expert psychosocial support to people living and coping with cancer. It is a must-read for anyone experiencing cancer whether from a first-hand perspective having received a cancer diagnosis, a relative, friend, loved one, a healthcare professional or indeed one of many who work in the field of cancer treatment and cancer care on a professional or voluntary basis.
As Prof David Kerr (Professor of Cancer Medicine, University of Oxford) says:
“This book will contribute to improving the quality of life and mental health of cancer patients around the globe”
Coalface Caring….
By Dr Sidney Bindemann
Coalface Caring, as the name suggests, is a resource that aims to provide an additional means of support and encouragement for those who are currently experiencing health-related concerns, whether in themselves or in others.
It comes out of 30+ years of providing psychosocial support to people and their families living an coping with cancer.
What is on offer here is by no means “rocket science” (although it is rooted and grounded, wherever possible, in sound scientific research and practice). In its way therefore, it is at least as valuable and, at this precise moment in time may be, much more relevant and meaningful to your day-by-day life and functioning.